The Human Genetics Awareness Association, HuGAA, recently held its very first meeting, marking the beginning of an exciting chapter in the organization's mission to raise awareness about genetic conditions. The meeting, conducted with enthusiasm and dedication, laid the foundation for the association's future activities and ambitions. This essay provides a comprehensive recap of the inaugural HuGAA meeting, highlighting the significant discussions, decisions, and the promising direction in which the association is headed.
The meeting commenced with a warm welcome and introductions, setting a positive and inclusive tone for all participants. Members gathered at the meeting held at the TAF Africa Conference center while some members joined virtually, excited and ready to embark on a mission of education and advocacy.
The meeting kicked off by outlining the reason for the formation of HuGAA as an association. This provided context for the following discussions and underscored the significance of the association's mission.
HuGAA's mission was clearly defined, emphasizing the aim to educate the general public about genetics and to combat the stigma surrounding genetic conditions. This mission embodies the essence of HuGAA and forms the core of its activities.
One of the meeting's highlights was a comprehensive discussion on DNA, encompassing its history, structure, and how it is passed down through families. The exploration of this fundamental genetic component provides members with a solid foundation for their future work. The lecture was provided by Francesco Rivetti, a MSc in Genomic Medicine graduate from the University of Oxford. Members delved into the factors that trigger genetic illnesses and explored the various modes of transmission. This knowledge equips them to better understand the complexities of genetic conditions. The meeting clarified the concept of dominance and recessiveness in genetic conditions, based on the number of altered gene copies. Members learned that a single altered gene often leads to being labeled a "carrier" of the disease, as they carry the gene but remain unaffected. Sporadic and sex-related genetic diseases were thoroughly discussed, highlighting the unique characteristics and origins of these conditions. Understanding these distinctions is vital in recognizing and addressing genetic diseases.
Recognizing that many members have limited knowledge of genetics, it was unanimously agreed that education and training are essential. This commitment to learning ensures that HuGAA members are well-equipped to fulfill their mission.
HuGAA is committed to identifying and collaborating with other organizations sharing a similar mission. Additionally, the association has plans to visit various institutions to strengthen their network and advocacy efforts.
The association is taking proactive steps to spread awareness, including the creation of a dedicated media strategy group chat for social media outreach. This strategy will help HuGAA reach a broader audience and drive home their mission. The team will continue discussions to fine-tune their content strategy, ensuring that their message reaches the right audience in the most effective manner. Volunteers have stepped forward to assist with social media branding, with Sainabou taking the lead. A strategic approach to branding will help HuGAA establish a strong online presence.
Despite being in its infancy stage, HuGAA recognized the need for funds to support its activities. The executive team has been tasked with brainstorming ideas for fundraising, including bake sales and grant applications.
The inaugural HuGAA meeting was a resounding success, underscoring the commitment and enthusiasm of its members. The gathering provided essential knowledge about genetics, clarified the association's mission, and initiated important steps toward spreading awareness. HuGAA, in its early stages, is brimming with potential, and its promising journey has just begun.
Meeting minutes compiled by Abbis B. Ceesay and text composed by Sainabou Laye Ndure.