About Us

Mission

To raise awareness of the prevalence of Genetic diseases. Promote destigmatisation and provide psychological support to affected individuals and their families.

Introduction 

There is a global rise in genetic awareness and such knowledge must also be distributed to the less privileged masses. Genetics is continuously evolving field and as more insight in learnt about "who we are" as individuals the more the knowledge should be disseminated. 

Human genetics refers to how traits and characteristics, like eye colour, or height, are passed down from parents to their children. It also studies how susceptibility to certain diseases or disorders can be inherited and passed on through generations. The study of Human genetics involves identifying genetic variants existing within a person or a population. These variants can occasionally lead to medical susceptibility. Not all DNA changes lead to diseases. The ones that do, usually affect how certain functionalities within a person operate. Examples of genetic diseases are sickle cell anaemia, haemophilia and Osteogenesis imperfecta.

There is a need of public awareness of genetic diseases in many nations. The stigma associated with genetic diseases often lead to isolation and in some cases, extreme measures that might result to death. This is mainly due to minimal or lack of knowledge about genetic diseases. Informing individuals and communities about genetic diseases will aid in understanding the underlying reasons for such diseases. Destigmatising genetic diseases can also yield more inclusivity within communities and relief to affected individuals and their family members. 

With increase in awareness, support groups and genetic counselling services can be established to help support affected members. This can result to better mental health and promote unity.

Although cure is yet to be developed for most genetic diseases, being aware of a condition one is affected with and being supported can be very beneficial. This can be seen as a step to recovery. Emotional tension rises with knowledge about being affected by a genetic disease, therefore counselling and psychological support is paramount for acceptance and ease of livelihood.